I've been thinking.....

Okay, before I go into what I've been thinking (I know you all are so curious...lol), I will fill you in about the last few days. Zech has had an interesting week. School for three days, with an Easter party on Wednesday, and then to Vanderbilt today for a scoping surgery to find out why his urine doesn't flow properly. Well, there were no obstructions, no scarring, possibly some narrowing that the scoping could have stretched enough that he won't have any more problems. He goes back in a month for a follow-up. All went well, another successful trip to the hospital. Zech does NOT do well with any medicines that has an impact on his mind. With that being said, he wakes up SO grouchy after having general anesthesia that he can not have the medicine that helps you wake up happier! Telling EVERYONE this, guess what, they gave it to him anyways!! Very frustrating! He's over it know though, thank you Yaweh!!

Megan went to Detroit today. She has been celebrating her Birthday all week (presents every day from herself or her boyfriend..too cute!) Tomorrow is her official birthday. We believe she has a full time job now. She has a meeting with the company in a week, based on what they said over the phone, I think she has the job and the meeting is formalities.

Macey is finishing up her first year of law school. I think she'll be done in a week. I hope year two isn't as stressful.


So, what have I been thinking?! Well, nothing spectacular, or probably nothing that someone else hasn't thought of, but there are so many things that go on with Zech, I wish there was a "place" to go to talk to people. A place to see how other kids with Ds progress, what are their actual days like. How do other kids interact with kids with Ds. I know, there a places to find out basic info., but not details. I'm talking even things that a lot of people might find embarrassing to talk about. Things you might even think but are afraid to say it out loud, you know, maybe it would be politically incorrect (really socially incorrect). What would be the best way to get this going? Well, my thought is just blog about my personal experiences, get into detail about my son, maybe people will start commenting on their experiences. I don't know, just a thought. I'll begin with some things this week (though if I continue, I'll start a different blog for that).

So,I get so confused about Zech's status. Confused, worried, excited, proud, and overwhelmed! All these feelings, at different times of course, but all in the same day!! One minute I'm so impressed by his progress, the next it's like he doesn't understand a thing I'm asking him to do. Is most of it because he has Ds or am I seeing the affects of the brain abscess...I DON"T KNOW!!! I'm in constant worry....'Oh, no...is IT back'???? Then I lay in bed and cry, worried something will happen to him. Well, I'm a Christian, I've given it to Yaweh....then how can I be sad, how can I be worried?! Ugh!! I ask Zech to SAY his ABC's...he starts to sign them...I say ' Use your words'...no response....blank stare.....Does he understand the word 'say', is he saying them in his head, just can't get the words to form.....HELP!!!!! Who do I ask, where do I go? Is there someone who can help?! I have no answers, I feel I have no control (does that make me a control freak?). Well, for today, I will just rest. Rest in the Lord. Know HE is in control (and pray he'll share his thoughts with me soon....lol).